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Welcome to EFA News, dear advocates and partners,

The next week will be a big one for lung health and patient advocacy, as we will gather the #EFACommunity of members at the European Parliament to advocate for action on lung health in Europe.

On 4 February, alongside sister European-level healthcare professionals and patient associations, we will take part in the ceremony organised by Lungs Europe to reinstall the Members of the European Parliament (MEP) Lung Health Group and support policies to #KeepBreathing in Europe. On 5 February, EFA will hold “Raising the Standards of Care for COPD in Europe,” a policy roundtable with three MEPs to discuss better #COPDStandardsofCare across Europe to #KeepBreathing.

Beyond lung health, EFA and GA²LEN have launched a new joint action plan: “Towards a Common Approach for Managing Food Allergy and Anaphylaxis at School.” Co-authored by EFA’s food allergy community, this initiative outlines four key steps to improve safety for children at risk of anaphylaxis in schools.

We look forward to an impactful month ahead, see you in Brussels!

Marcia Podestà
EFA President

Community
Join us online: Raising the Standards of Care for COPD in Europe

COPD is one of the most pressing yet overlooked public health challenges in Europe. On 5 February, EFA is organising “Raising the Standards of Care for COPD in Europe” at the European Parliament, bringing together policymakers, patient advocates and civil society to call for stronger COPD care and prevention.

Following our 2024 report, this roundtable will highlight the urgent need to prioritise COPD on health agendas and explore solutions to improve standards of care across Europe.

Registrations for in-person attendance are closed, but you can still register to participate online until 3 February and be part of the discussion!

Register here
 
Prevent
Protecting students with food allergies: EFA and GA2LEN publish joint action plan on anaphylaxis management in schools

EFA and GA2LEN’s new joint action plan, “Towards a Common Approach for Managing Food Allergy and Anaphylaxis at School,” outlines four steps to improve children’s safety from the risk of anaphylaxis in schools. Led by EFA President Marcia Podestà as the first author and co-authored by the EFA food allergy community, this collaborative effort highlights the power of patients and experts working together. From staff training to emergency preparedness, it provides practical actions to protect students.

Read more
 
Care
The EU expands the list of critical medicines: what is in it for allergy, atopic eczema, asthma and COPD care?

The European Union list of critical medicines now includes 288 essential treatments and five of them are directly used for asthma and COPD. Our analysis explains this important coordination effort of the EU to ensure patients’ access and describes the different medicines included in the list that are critical for patients with airways diseases.

Read EFA analysis
A new era for patient access to care in Europe: the EU HTA Regulation enters into force

The launch of the first EU-level cooperation framework on Health Technology Assessment (HTA) will streamline the processes before new health technologies enter the market, making them more harmonised, efficient and patient-focused. Joint clinical assessments and EU-level reports will support national health ministries in deciding which medicines and medical devices to prescribe, for which conditions, and under what pricing and reimbursement schemes.

Read more
Is the EU better prepared for a pandemic? EFA’s evaluation of the EU serious cross-border threats to health regulation

The evaluation of the Serious Cross-Border Threats to Health (SCBHT) Regulation assesses the EU’s readiness for future health crises, ensuring stronger coordination and preparedness. EFA’s response highlights the need for greater civil society involvement, action on healthcare workforce shortages, and recognition of chronic diseases and climate change as key health threats to build a more resilient health system.

Read EFA response
 
Climate change
EFA Advocates for Clean Air at EU Healthy Air Coalition Event

At the EU Healthy Air Coalition event, EFA Board member Christine Strous highlighted the urgent need for clean air as a healthcare priority and sharing powerful stories from the #EFACommunity about how air pollution impacts patients with asthma, allergy and COPD. EFA is calling for immediate action to address this health crisis by putting clean air at the top of political agendas and involving patients in shaping policies.

Follow us on Linkedin for updates
 
Members Community News
Upcoming online events from the Austrian Lung Union

The Austrian Lung Union continues to provide valuable support for people with chronic lung diseases through free online patient information events. These video conferences offer expert insights on key health topics, including lung diseases, allergies, clean air and vaccinations. Next session: Breathing training – usually held every 1st Wednesday of the month.

When: 12 February 2025, 18:00 CET

No registration required.

Join and learn (in German)
Anaphylaxis Day 2025: learn how to save a life

On Anaphylaxis Day 2025, the Finnish Allergy, Skin and Asthma Federation highlights the importance of recognising and responding to life-threatening allergic reactions. This year’s theme focuses on first aid for anaphylaxis, emphasising the need for quick action and the use of adrenaline injectors.

Learn more (in Finnish)
Join the 'Fridays with Allergology' series (in Polish)

The Polish Federation of Asthma, Allergy, and COPD Patients’ Organisations invites you to stay up to date on the latest trends in allergy diagnosis and treatment. Check out “Fridays with Allergology”, a series of multidisciplinary video podcasts by the Polish Society of Allergology.

Watch here
“Let’s give voice” - a campaign to raise awareness about COPD

EFA Members from Italy, Respiriamo Insieme, in collaboration with scientific societies, has launched the “DIAMOGLI VOCE" (Let’s give voice) campaign to increase awareness, provide information and support patients living with COPD. This joint effort offers valuable resources, tips for managing the disease and personal stories to help patients take control of their health.

Learn more (in Italian)

Copyright (C) 2024 European Federation of Allergy and Airways Diseases Patients' Associations. All rights reserved.

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