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Welcome to EFA News, dear advocates and partners,

This year began with an important moment for our community. On 13 January, EFA and its member organisations launched the Europe-wide Atopic Eczema #BreakTheInvisibleBurden campaign at the European Parliament. The launch featured a photo and video exhibition featuring portraits of patients across Europe and a cross-party policy roundtable discussing European policy solutions for atopic eczema following the World Health Assembly resolution adopted in May 2025. Patients and families shared their testimonies at the heart of EU decision making and showed, with honesty and courage, what it means to live with atopic eczema every day and why our campaign asks are urgent and timely. Thank you to everyone who participated and helped make this launch possible.

This momentum will continue in the weeks ahead. On 26 February, I will take part in a European Parliament discussion organised by the European Academy of Dermatology and Venereology on turning global commitments on skin diseases into EU and national action. Stay tuned for highlights!

Warm regards,

Marcia Podestà
EFA President

Community
Cyprus Council Presidency: EFA’s patient priorities for 2026

From January to June 2026, Cyprus chairs the Council of the EU. EFA will engage throughout the Presidency to make allergy and respiratory health visible in the work programme and negotiations. Our priorities include:

• securing stronger EU investment in health in the next Multiannual Financial Framework
• tackling critical medicine shortages affecting respiratory and allergy care
• advancing reforms on medical devices
• moving forward on tobacco and nicotine rules
• accelerating EU-wide action on precautionary allergen labelling (PAL)
• and putting healthy housing on the EU health agenda.

Explore Cyprus work programme
European Respiratory Patient Academy impact: new report from the first training in Prague

EFA’s European Respiratory Patient Academy brought patient advocates together in Prague for the first immersive training programme co-developed with the Steering Committee of European respiratory patient organisations. The report focuses on the participants and their learning experience, a snapshot of the Academy’s impact and the value of investing in patient knowledge and leadership to strengthen engagement in research, healthcare and policy discussions.

Read the report
 
Care
Breaking the invisible burden: atopic eczema patients bring their lived reality to the European Parliament

Earlier this month, EFA’s atopic eczema community brought their lived experience into the European Parliament through Atopical Lives — an immersive photo and video exhibition featuring portraits and patient testimonies. Hosted by MEP Laurent Castillo (EPP*, France), the exhibition was followed by a cross-party policy roundtable with MEP Castillo, MEP Tilly Metz (Greens, Luxembourg), MEP Aurelijus Veryga (ECR, Lithuania) and WHO Representative Dr Kingsley Asiedu. Discussions focused on what EU-level action could look like: tackling stigma and mental health impacts, improving data and awareness, supporting multidisciplinary care and reducing uneven access to effective treatments, all this building on the momentum of the 2025 WHA resolution on skin diseases.
*Following the week of the exhibition, MEP Castillo was reported to have left the EPP group

Read more
 
Prevent
EAACI publishes new guidelines on urban green spaces with patient input from EFA and our members

The European Academy of Allergy and Clinical Immunology (EAACI) published four new guidelines on the role of urban green spaces in allergy and asthma prevention. The guidance highlights evidence that access to green areas and biodiversity can support both primary and secondary prevention across conditions including allergic rhinitis, atopic eczema and food allergy. The guidelines also reflect the expertise from the EFA Community of patients: Organisation for Respiratory Health in Finland (Hengitysliitto), AEPNAA (Spain), the Bosnian Association of Patients with Asthma, Allergies and Atopic Dermatitis (AAA), Allergy UK contributed to the work, and EFA’s Senior Policy Advisor Panagiotis Chaslaridis is among the co-authors. This shows how patient perspectives can strengthen evidence-based recommendations with real-world relevance.

Explore EAACI guidelines
 
Members Community News
DAAB warns about AI-generated misinformation in allergy and asthma content

EFA member Deutscher Allergie- und Asthmabund (DAAB) is raising awareness about misleading health information linked to artificial intelligence in the fields of allergy, asthma and skin conditions. DAAB notes that AI-generated stories and “advice” can look credible while lacking any scientific basis, which may confuse patients, create false expectations and in some cases encourage harmful behaviours. DAAB encourages people to check sources carefully and rely on medically verified information when making health decisions.

Read more (in German)
National Respiratory Patients Convention in Madrid organised by FENAER

FENAER will hold its National Convention of Respiratory Patients on 13–14 March 2026 in Madrid. Under the theme “Access and Innovation”, the event will bring together patient organisations, healthcare professionals and researchers to discuss priorities in respiratory care, including equitable access to treatment, innovation, environmental factors and the sustainability of health systems.

Learn more (in Spanish)
Alergia y Asma President speaks on BBC about the invisible impact of severe allergies

Irantzu Muerza, President of Asma y Alergia España, joined the BBC World Service programme The Conversation to discuss the often unseen social and emotional impact of living with severe asthma and allergies. Speaking from personal experience of late diagnosis and complex treatment, she described how these conditions can shape everyday life well beyond physical symptoms. She also underlined the need for earlier diagnosis, access to appropriate care, and better recognition of the emotional burden faced by people living with severe asthma and allergies.

Find out more (in Spanish)
New report on rising allergy and eczema prevalence by Asthma-Allergy Denmark

EFA members from Asthma-Allergy Denmark published a new report indicating that allergies and eczema now affect one in three people in Denmark. Based on 11 years of self-reported data collected by the Center for Clinical Research and Prevention in Copenhagen, the findings point to a steady rise in hay fever, food allergies and eczema. The report also highlights the broader impact on daily life, with people affected reporting poorer physical and mental health compared to the general population.

Find out more (in Danish)
The impact of biologic medicines on quality of life - AO Iceland view

The Allergy and Asthma Association of Iceland is showing how biologic medicines are changing care for people living with severe allergic and respiratory conditions. By targeting specific drivers of inflammation, these newer therapies can reduce symptoms and flare-ups, lower the need for emergency care, and help patients regain daily functioning when standard treatments are not enough.

Read more

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